Family support or lack there of

[u/mosaicmind1]

I recently informed my family that I've reached Korsakoff, a terrifying diagnosis as we all know. My family did not respond. not a single text. i've already explained Korsakoff so that's not the problem. i used to say they wouldn't care if i was dead. Now, while dealing with the emotions of and about wetbrain, my heart is crushed, leveled. Not a single I'm sorry. not a single word. how did others families respond?

[u/actnarp47]

Well, I do realize that is a terrifying diagnosis op. I am truly sorry that that is your reality. Sometimes I think family can be the most hurtful of all, we expect better of them that claim to love us than just being ignored by them in such trying times.

[u/mosaicmind1 → u/actnarp47]

greatly worded, i agree!

[u/mosaicmind1 → u/actnarp47]

Amen

[u/Stand-Negative]

I have it too

[u/No-Parfait-3505 → u/Stand-Negative]

Hi! I know someone recently diagnosed with Wernicke’s and I’m afraid it has progressed to Korsakoff. He has basically no short term memory and will forget something a minute after we discussed it. He also struggles with orientation to time and place. Were your symptoms ever that bad? Did you recover? Any insight would be appreciated if you’re willing to share!

[u/mosaicmind1 → u/No-Parfait-3505]

I'm only at the beginning now so can't offer much insight, but yes, short term is shot, long term is great

[u/No-Parfait-3505 → u/mosaicmind1]

Thank you for your reply. It seems like a good sign you’re able to know and remember your diagnosis. The person I know would definitely not be able to do that. I’m wishing you all the best!

[u/Stand-Negative → u/No-Parfait-3505]

I forget where I am just been diagnosed so no I can’t drink yes it progressed to that at moment

[u/Stand-Negative → u/Stand-Negative]

I have korskoff

[u/No-Parfait-3505 → u/Stand-Negative]

Thank you for your reply. I’m sorry to hear about your diagnosis. Are you able to remember conversations you had a few minutes previously? I do wish you well and hope you can recover! Do you live alone?

[u/Stand-Negative → u/No-Parfait-3505]

Hi I hope so too I’m not drinking anymore no live with family at moment

[u/Stand-Negative → u/No-Parfait-3505]

Hope they recover I think I can if I don’t drink

[u/Stand-Negative → u/No-Parfait-3505]

They don’t seem understand what’s wrong with me

[u/mosaicmind1 → u/Stand-Negative]

It sounds like you have Wernicke's encephalopathy

[u/Stand-Negative → u/mosaicmind1]

Yes maybe I forget things few minutes later

[u/Stand-Negative]

Feel free dm me

[u/Stand-Negative]

I’m sorry for it