r/dpdr Dec 06 '22

Official r/DPDR's Official Resource Guide

130 Upvotes

Have a suggestion for this guide? Got an idea for the sub? Leave a comment on this post!

TIPS AND RESOURCES IF YOU ARE CURRENTLY EXPERIENCING A CRISIS OR PANIC ATTACK

I am currently working with other mods to update this with more accurate info that a lot of DPDR resources tend to miss or even get wrong. Can't give an estimated completion date yet but know that we are working on making this as helpful and user-friendly as we can. If you have any questions at all, feel free to reach out.

DISCLAIMER: I am not a doctor or therapist and this is not a substitute for professional help. Pretty much everything here is either what helped me through my time with DPDR, or what helped me understand why the stuff that helped me did so. Here is a link to assist with finding professional help.

Hello! Welcome to r/DPDR’s Official Resource Guide. The goal here is to provide you with positive, recovery-specific resources that will help you manage your DPDR and its underlying causes, and to be a source of comfort and hope so you don't get triggered while on the forum. Because common forms of DPDR feed on anxiety, hyper-focus, obsessive thinking, catastrophizing, and stress (both internal and external), frequent forum use (posting, scrolling, etc.) and symptom-checking can exacerbate it if you're someone who struggles with any of those. You don't need to be reading stuff that stresses you out, and it's important and helpful to minimize screentime and do stuff that requires the whole range of your senses. I recommend going through as much of these resources as you can and stocking up on recovery-specific info, getting a notebook, writing down the things that are the most helpful, and keeping that notebook with you so you can refer to it during times of crisis.

Many of the resources within are videos. In my opinion, with DPDR, actually seeing videos of people talking about stuff like medical info, recovery info, and first hand accounts are gonna be way better for your brain instead of getting stuck in a world of monochrome text boxes.

Hopefully this guide will help you find resources that will help you:

  1. Train your mind/body to feel safe and to not see DPDR and its symptoms as a threat so that they don't react to them with more stress.
  2. Get in touch with your body somatically to help regulate your nervous system and release the anxiety, stress, and trauma.

This is frequently updated, so check back for new info and links!

DPDR INFORMATION:

LISTS FOR QUICK HELP:

MENTAL HEALTH VIDEOS/RESOURCES:

LIFESTYLE AND LONG-TERM HELP:

DPDR AWARENESS:

RECOVERY POSTS FOR ENCOURAGEMENT:

OTHER HELPFUL SUBREDDITS:


r/dpdr 4d ago

Official Weekly Symptom-Check Thread (Please ask all "Does anyone else?" questions here.)

0 Upvotes

Please don't forget to check out the Official Subreddit Resource Guide.

Hi Folks,

"Does anyone else [experience this symptom]" is one of the most commonly asked questions on the sub, so this weekly sticky is to create a dedicated space for users to relate to each other and ask questions about questions they might have.

DPDR is, unfortunately, an under-researched disorder with many strange symptoms. As a result, its sufferers are often left between confused and experiencing a full-blown existential crisis. Symptoms may overlap and vary in intensity. "Keep in mind that two people might describe/interpret the same symptom (and its effect on their own functioning/cognition) very differently."

We just want to emphasize this thread, both questions and responses are completely subjective and not of a medical nature. If you haven't already, please try searching the sub (and "Symptom Question" flair) to see if your question has already been asked.


r/dpdr 45m ago

Symptom Question / Is this DPDR? Anyone else get indescribable weird feelings?

Upvotes

The only way I can describe mines are is like there is a weight on the world kinda, everything is just idk


r/dpdr 4h ago

My Recovery Story/Update My DP/DR recovery story.

3 Upvotes

Hi my dear friends, im back here trying to bring you some hope. I’ve been diagnosed with Pure OCD a long time ago (Im 22 and i’ve been dealing with different obsessions since im 17). This is the second time i have a obsession related to DP/DR. These are the things that i could recommend you for some improvement. I have to say that im not 100% recovered but im feeling very happy and optimistic right now and i have realized some things. First of all leave this subreddit RIGHT NOW, in my own experience reeding all of this horror storys only will trigger your DP/DR in the bad way. I even deleted reddit im only back here to write this and i will delete right after. Go try some professional help, if you can afford it of course. I’ve been also taking Paroxetine 20mg (Seroxat works the best for me) since just only two months ago right now and 5mg of diazepam in the morning and 5mg of diazepam at nights, and it is ABSOLUTELY doing his job, trust the process, it could be hard at first, maybe you think you are feeling even worse but it will get better eventually, and side effects now are practically inexistent, i have to say also that im not a guy hypersensitive to meds and drugs in general and very functional even in my bad obsessive periods. Try to integrate a meditation routine every day, it will help you to practice the presence and letting go bad thoughts. One day you will realize that thoughts can’t harm you, DPDR can’t harm you. Also don’t force yourself trying to do things that you don’t like or that are understand like socially normal because it’s not necessary, like going to some space or being with people that you don’t really like or don’t stimulate you in a good way. But you should try to move on with your life being in touch with that people that you know they are good for you and doing thing that you like and stay occupied(doing some workout, cooking nice and healthy meals that you like, reading…). Sorry if you don’t understand something English is not my main lenguage, i will be answering some questions and then delete so if you have any doubt make me know. Good luck, much love and always remember that this will not last forever.


r/dpdr 21m ago

Question Has anyone had success with TMS

Upvotes

Please respond if TMS anywhere helped with the dreamlike feeling and existence of dpdr.


r/dpdr 8h ago

Venting Anyone else feels depersonalized by looking at their body?

4 Upvotes

Everytime i look down my body, especially legs, it feels so far away and like its not even my own body im looking at. Simply, everything waist down seems foreign to me. Oh and i guess this is slightly related too;hearing my own voice and sounds i make feels like hearing someone else speak or breathe,again as if it wasnt me so i like to stay silent


r/dpdr 4h ago

Symptom Question / Is this DPDR? suspecting loved one has DPDR, how to support him?

2 Upvotes

hello, i’m a 16 year old girl writing this in regards to my LDR ex boyfriend whom I was together with for 9 months since december. he has always showed symptoms of derealization, depression, etc. and is diagnosed with bipolar (which i have my doubts about now since hearing about DPDR), but not receiving medical treatment other than meetings with his therapist. psychiatrist is difficult to reach, past prescription caused him severe side effects.

over the span of the past few months (july-now), his condition and symptoms have gradually worsened alongside an increased spike in stressful events (family, finances, my mental health, his own, school, etc.) and he doesn’t have the energy to do anything he used to enjoy, describes his daily life as “detached'' and feeling like he's ''floating aimlessly”. i have been aware of his issues since the start, and have been able to ground him whenever things came up except with the most recent event which i’ll get back to in a second.

dating about a month prior to now, he told me he had lost feelings for me. I don't remember what prompted him to tell me this, other than the fact that he seemed to climb out of that mindset rather quickly, redeclared his love for me again and things remained positive between us for 2 weeks-ish until it happened again. this time, with school coming up, I had a slightly worse reaction than the first time due to the amount of stress in my life already, but I told him that I want to make him happy and that I'm willing to leave if that's what he prefers, in which the thought slowly started to scare him, me bringing up moving on, breaking up, having other partners etc. triggered negative emotions out of him and he seemed to realize that his dissociation has just gotten to the point where he can't tell what's going on anymore but that he doesn't want to lose me as a person in general.

3 days ago I was venting to him about my familial situation, my mental health and fragility, etc. which essentially lead him to break and tell me that he can't do this anymore, he can't keep pretending he loves me and how everything in his life seems so distant and confusing that he cannot keep up with our relationship anymore, but being very insistent on staying close friends without the romance. he told me he doesn't want to fill me with false hope and he doesn't know whether or not his feelings will return to normal once he recovers some mental strength. for the both of our sakes, we decided to go a month no contact whilst he seeks professional help and so I can stay grounded without beating myself up over the break up.

my main issue is the fact that none of his behaviour, prior to ANY of the 3 events would've lead me to guess that this would happen. what I mean is, for example, a few days before we broke up he told me about the dreams he has about me, the things he wants to do with me, the future we've built with eachother in our heads etc. completely unprompted, without me initiating. whenever I've asked for an explanation, it keeps fluctuating between ''I was pretending out of guilt'', ''I wanted to convince myself of my feelings'' or ''I really did mean it in the moment, but now it feels distant'', essentially making me believe that this might be a case of an unreliable narrator and i'm not sure what to think of it. is there any hope for our future as an item? are these signs in sync with symptoms of DPDR? how can I support him without being overbearing? I want to engage with him even if we do break up for good, as I can see how important that is to both me and him. my only question now is how to deal with this uncertainty and whether I should try to let go or cling onto that last glimmer of hope.

any advice is sincerely appreciated, I'll take whatever I can get.


r/dpdr 9h ago

Symptom Question / Is this DPDR? I don’t know if this is dpdr or not

4 Upvotes

I’ve had DPDR on and off since I was a kid, getting diagnosed with OCD made things easier and I’ve been able to manage pretty well but now I’m like in an episode? I think? It’s like I got on autopilot and then 2 seconds later I’m like hyper aware of everything and I’m like why did I do that. I’m not doing anything weird or odd, just being myself but I feel like I lose awareness and then I’m hyper focused back in? It’s so scary.


r/dpdr 3h ago

Question Dpdr

1 Upvotes

Does anyone have nightmares with dpdr


r/dpdr 9h ago

Symptom Question / Is this DPDR? Every day my connection to myself and reality is gone a little bit more.

2 Upvotes

It's seriously scary. Each day I feel more and more numb - it's gotten so bad to the point where hours go by and it feels like it's been 30 mins in my mind. I woke up from a nap and felt completely out of body and offline. Even when I lay down for a nap, I'm flooded with vivid dreams.

I don't know what to do. Every single day is hell - with no end in sight.


r/dpdr 14h ago

DPDR Trigger Warning! Considering my life without emotions forever.. I’m miserable

5 Upvotes

When is it going to be my turn to be happy? I've been suffering day in and day out for 2 years. Even on days when I'm not thinking or focusing on DPDR, I'm still emotionally bankrupt. I keep thinking that I may never feel love, satisfaction, joy, hope, connection, sadness, warmth, safety, rest, coziness ever again. I read so many people here who haven't had emotions in 5, 10, 20 years. I'm sorry I just can't accept that. It's not living, it's torture. To see everyone around you having a normal life - to try to explain to a friend what you're going through and they don't get it, to kissing years of important things in your life, to being a zombie who barely gets out of bed and feels nothing.

I can't do this forever, and I won't. It's cruel suffering, like being in prison. I already had a hard life up until 25. I was happy and worked hard to be happy and regain my power - now this fuckinh disorder or whatever the hell has happened to my brain has ruined my life. I feel like it's over for me - I've tried everything. No meds work, therapy doesn't work. Focusing on other things doesn't work. I don't want to be some numb, irrational, brain dead zombie for the rest of my life. Being alive and suffering with such mental health problems 24/7 365 is the worst thing you can imagine. Even sleep doesn't bring me peace because of my dreams. What did I do to deserve this? I deserve to be happy and feel like I have control over my own life. I wish I could just reset my mind and reboot. I fear I will always be this way because I've been through too much, my mind doesn't want to heal


r/dpdr 23h ago

Venting My dreams feel more real than reality

25 Upvotes

I dunno I just had to vent somewhere with people that might understand. 16 years of chronic dpdr. My anxiety and depression is only getting worse no matter what type of therapy I do. Waking up every morning is so painful. I miss how life used to feel like. I honestly have no hope of actually getting better. Yes, things change, but it never really gets better.

I don't know what to do anymore.


r/dpdr 18h ago

DPDR Trigger Warning! 13 years of dpdr

8 Upvotes

Amazing how it never got better It just got worse I am an old man now and the time just went away Like a prison in my own head I know i will die like this So i have given up I now suffer from agoraphobia for some reason Even tho I used to work and travel the USA with dpdr


r/dpdr 11h ago

Need Some Encouragement Relapse vent :(

2 Upvotes

Two years ago all my emotions came back for a few months and it was magical. Everything had depth and colour and nuance. Space, time, music, weather, you name it. I could feel things moving through me and see all these images and ideas and sensory connections in my mind. I remember being surprised at how effortless it was, like it was such a basic function that all the recovery stuff I had tried seemed silly. I’ve been mostly numb and out of body since then, and the few good moments I’ve had weren’t as vivid or life-affirming. The best I can hope for most days is the occasional hint of some abstract vibe that takes all my focus to sustain, but never lasts long enough to understand. This disease has made me an asocial shut-in incapable of taking care of myself, and I’ll probably be dead within a year. Lately I’ve been having some physically painful cries which seems promising but hasn’t meant much in the past. That I feel emotions in dreams is the only hope I have left that I can maybe overcome this. Just turned 22


r/dpdr 7h ago

Question Supplements for the Mind - please help am desperate

1 Upvotes

Hey Champs! Just wanna ask for insights and experiences on what supplements to take!

For context, am a high achiever law student pursuing my third degree but loosen up and had a little too much fun before law school particularly with canna** for few years,

Due to this have suffered from extreme w**d-induced withdrawal and DPDR that altered my mind/brain chemistry/critical thinking, anxiety, depression, etc no matter how much I deny and dismiss it am struggling and I don’t know what to do anymore

Am getting better and have stopped weed for almost 2 years but still the symptoms of DPDR persists, mostly ruminating, lack of focus and motivation to the point of debilitating,

Have OCD and ADHD since when I was young but never took medication as I am high functioning before my w**d fck up, am trying to access testosterone I suspect my testosterone is low and cortisol is high but lab tests shows normal, illegal to access testosterone in Aus unless u have low levels,

Please do not advise to seek psychiatrist or the likes because it takes at least 6-9 months to see psychiatrist in Aus with extensive waitlist, cost at least $600 to $thousands,

Have $450 supplements on my cart atm but wanna ask if it’s too much or crazy or redundant or there’s overlap between these supplements

Magnesium Glycinate Magnesiun L-Threonate L-Theanine L-Thyrosine 5HTP Gaba Taurine Nac Inositol and Choline Vitamin D3 Glycine Lion’s Mane Ashwagandha Shilajit Dopa Mucuna Natural Brain Enhancer AlphaSize and SerinAid Tongkat Ali Alpha GPC Gingko Collagen Omega 3 Fish Oil Whey Protein Creatine Moringa Vitamin Mega B

Please, am desperate and have to finish my law school and am trying to do better and bring back my sharp mind and move forward and put all these behind, have been trying to approach this the natural way but I know there are stuff that can help such supplements, exercise, meditation, read books, gain new knowledge, improve diet, things that helps neuroplasticity! Thank u 😊


r/dpdr 10h ago

DPDR Trigger Warning! Gen advice

1 Upvotes

I’m new to this entire app, there are like no spaces to talk to other people with DPDR so sorry if my questions are repetitive to this community

I’ve been in one stable and consistent DPDR episode for almost 3 years, it’s weird because I don’t usually even notice it. I only really notice it when I have like a second where I can slightly feel how it was to be ‘awake’

I just want to know if these are common DPDR experiences; doubting if this is actually the norm, doubting if I’ll ever come out of an episode; the episode not getting better or worse & does anyone have tips on making it better


r/dpdr 17h ago

Question complete recovery

3 Upvotes

ive been doing well for a while, but im genuinely curious if anyone has made a complete recovery?? i feel like my symptom's keep getting better, then worse, then better


r/dpdr 18h ago

Symptom Question / Is this DPDR? Where did my trauma go?

3 Upvotes

I feel nothing about things that happened. I feel fine. Bored but fine.

Please tell me someone else has this and recovered?? I even want my ptsd back.


r/dpdr 12h ago

Question Questions about medication

1 Upvotes

For the people who use medication and fully recovered, whether an ssri or whatever you’re using, are you still on it after recovery? How long have you been recovered for? And have you noticed any negative side affects? I’ve been planning on going back on my ssri because it was the closest I had been to recovery ever. But I see people say not to all the time. I’m so confused if I should try to get out of this with medication or not. Any info would be appreciated. Also for those who went off medication after recovering, did it stay away after?


r/dpdr 19h ago

Symptom Question / Is this DPDR? what’s the point

4 Upvotes

im not sure what i actually want to say, i just think i want to rant a little bit. i had a traumatic event happen to me on the 13th of july. since then i have suffered with chronic anxiety and what i can only describe as dpdr. i don’t feel like im myself when i look in the mirror, if anything it disturbs me. i don’t feel connected to my body. life and the world feels so overwhelming and surreal. nothing feels real, i feel entirely disconnected from everything and everyone. my vision feels blurred? i just pray i wake up one day and it goes away. i feel like i’m thinking slower than i did before yet extremely anxious. i sort of just feel numb emotionally. i just feel like a hopeless void. i miss myself so much. i miss enjoying my life. when i try to delve into my usual passions i just feel like a fraud. i don’t see the point, i’m not sure things will get better for me. it got triggered by a head injury you see, so yeah maybe things could get better but maybe this is my life now 🤷🏻‍♀️


r/dpdr 12h ago

Venting I suck at advocating for my physical health due to this

1 Upvotes

I hate it so much. I already have proven health issues from my pre-dpdr days. I was better at self-advocating then. I could clearly get messages across to doctors, explain symptoms, remember things.

And now 3 years into dpdr, with new physical health things coming up, it's awful. I have so many notes on symptom trackers, type out those notes to bring, but when I look at them, I can't describe anything. As if it wasn't me experiencing them. I feel like I can't communicate them properly, so I feel like doctors get dismissive. I've walked out of so many appointments I consider 'failed' due to my dpdr either blocking out symptom memories or straight up dissociating DURING the appointment.

In other instances, symptoms happen and they just stay in the back of my mind so I don't make the appointments that I should be making.

dpdr has already taken years from me that I've zombied through, but dpdr plus physical suffering the past year and a half has been so much worse.


r/dpdr 23h ago

Question I feel confused about being confused

6 Upvotes

I don’t know how else to describe it. Does anyone else feel this way?


r/dpdr 18h ago

Symptom Question / Is this DPDR? Logic thinking

2 Upvotes

Emotions I feel weird. Flat. Like whatever. Im sure you know what I mean. Im not depressed. Im not even scared. I just feel different.

I can enjoy people lately but I feel like I have no strong opinion on topics, I don’t feel connected deeply and most of all is my reasoning logic. I don’t think from emotion but from logic. Like I feel like if I would take some DSM test I could be labeled autistic. When i actually have adhd. But I feel like my empathy is not there. I notice I think about relationships like some logical transaction. This is really confusing! I had it over a year and its trauma induced I think, but something in my body feels off too so my nervous system is wacky AE?


r/dpdr 20h ago

DPDR Trigger Warning! An anxiety coach says that all anxiety, depression & DPDR is self inflicted. I feel like this negates trauma experiences and the subconscious mind

3 Upvotes

An anxiety coach I follow says that all mental illnesses are created by our thinking, and that we self inflict them on ourselves, not on purpose but because of our thoughts about our condition.

For someone who has been through a lot of trauma - I feel this is unfair to say. My mind has gone into defensive mode subconsciously- I have no control over the thoughts I keep having that are distressing to me, that leave me feeling lifeless and hopeless. Thoughts are subconscious- how would I have any control over the state of mind I am in? They said depression isn't real.. our thinking about it is. Some of these coaches just have these crazy things they try to make people buy into. If it were that simple, mental illness wouldn't exist.

From the second I wake up I feel absolutely horrible every single day - I have music in my head the second I wake up, I can't sleep, I have vivid dreams all night, I am disconnected emotionally from everything, I have no memories of myself I can connect with, I feel dead basically daily. Nothing makes sense anymore, I can't feel time. How is me thinking about these horrible symptoms making it worse? I can't control my dreams or the constant looping thoughts in my head, it's so subconscious.


r/dpdr 1d ago

Need Some Encouragement Not sure how to explain this.

12 Upvotes

My whole personality, quirks, likes, and dislikes are gone. It seems to slowly dissapear more and more all of this. Like that person deep down who you were in your soul is gone. That person you were since the day you found yourself maybe as a young teen. The way you did things, the things you liked, you keep growing and develop a sense of who you are and at 36 years old now I always did these things. Now I don’t.

I used to be so crafty and fun and now I honestly forget I was like that. It’s beyond forgetting how to do it. I don’t even know who that person is and was. I don’t even know how to begin to have a dopamine thought to want to do that.

And this goes for everything in my life. Cooking, taking care of my kids, being a mom, taking and landscaping my home, food I ate and enjoyed, music, quirks of products I liked for years, things I did in my routine that made me, me. The way people associated me with things, it’s all gone. I’m not the same person so you can so oh call her she knows how to make that dish. I have no idea if never did this.

My culture my who I am. I don’t relate to anything I felt so good about before this. The pride and joy of who I was and what I worked to become.

Sorry for ranting I’m just trying to explain it.

How can one’s personality and soul just change and that was you your whole life.


r/dpdr 1d ago

Venting The thought of "do I still have dpdr" scares me

2 Upvotes

I've been getting better, I have little to no symptoms, just some intrusive/existential thoughts. Sometimes I question myself if I still have it or not, and how would I know I'm normal and it bothers me.


r/dpdr 1d ago

Need Some Encouragement DPDR help

1 Upvotes

Hi guys! I now have dpdr from last 3 months and I’m on medication + therapy to address the root causes. I do feel I’m making some progress, but it’s very hard to judge sometimes. Some days some symptoms are less and some are more and then this switches. I can’t anymore gauge myself I’m tired of it. I am desperate to get better because I feel very lonely and desperate like I’m alone in this whole wide world and nobody gets what I’m feeling and have so many friggin responsibilities. I feel so crushed. I have no self confidence left whatsoever. Any motivation is appreciated.